Enjoying Birthday Party

Enjoying Birthday Party
I love being 2 digits-way too much make up

Saturday, October 4, 2008

A long week for Leila



This past week we spent four days at Dr. B's office. Jenni, our nurse practioner, on left, checks up on Leila before she performed Leila's spinal tap. On Monday, Leila had a spinal tap as well as an all day chemotherapy called Cyclophosphamide. This chemo had to be administered slowly and flushed with sodium chloride for four hours. In addition to that she was given another chemo called Cytarabine and the regular Methotrexate which is given into the spinal fluid. This made for an eight hour day on Monday. The nurses made sure to give her a large dose of anti nausea medicine at the end of the day. The following days we went back for the Cytarabine which will continue every day next week also. She also started a new oral chemo called Thioguanine to be given at home once a day.

Leila made it through the week very well considering all that she was given. She was very tired and had stomach aches, but nothing out of the ordinary. She still had her tutor come three days last week. Mr. Gardner cut it short each day because she was tired and had a hard time concentrating.

We are getting close to the end of this treatment stage. It has gone very fast, thank goodness! We feel like we live at the clinic, but it is better than the hospital!!

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