Leila started the Delayed Intensification treatment stage this week. She had a spinal tap along with Vincristine and Doxorubicin. These are both chemo treatments that are given into her central line. She also started taking Dexamethasone (THE STEROID) again for 21 days. On Friday this week, she will have the PEG Asparaginase which is another chemo given intramuscular in her legs. This treatment stage is considered the toughest round, so we are preparing ourselves both mentally and physically. Leila has done so well throughout all of this, so we hope for the best and take each day as it comes.
Leila had her first home school tutor session today with Mr. Gardner. He will be coming three days a week to work with her. He will be keeping in touch with her first grade teacher to keep her up to date with what her class is doing. Hopefully this will help her to make a smooth transition back to school when she is able to return.
Leila had her first home school tutor session today with Mr. Gardner. He will be coming three days a week to work with her. He will be keeping in touch with her first grade teacher to keep her up to date with what her class is doing. Hopefully this will help her to make a smooth transition back to school when she is able to return.
1 comment:
Hi Leila,
My name is Victoria and my daughter Grace (now age 6) was diagnosed with ALL when she was 2. My Uncle Rodney Rouse is a friend of your daddy's.
I enjoyed reading your blog. You have so very much in common with Grace. She loves Hannah Montana, going to the beach, and playing Webkinz.
I am sorry that you are having to go through treatment. Many memories came flooding back while reading your blog. Dexamethasone is horrible! It tastes nasty and makes you want to eat lots of crazy things and puts you on an emotional rollercoaster. You are taking many of the same chemo's that Grace took.
I am happy to tell you that Grace has been off-treatment for almost 2years now. She is doing great and has only vague memories of having cancer. We still go in for check-ups with the oncologist, but no more chemo. She even had her port removed last October.
Dealing with a child with cancer is tough on the entire family. But, as my husband says "it doesn't get any easier, you just get used to it".
Grace took her Make-A-Wish in May 2006, after she was done with treatment, to DisneyWorld in Florida. It was the most amazing experience. They really rolled out the red-carpet for her and made her feel like a true princess. I hope your Wish comes true.
I will pray for your continued strength and wellness getting through your treatment.
Victoria Kubecka
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