Leila had an appointment with Dr. B on Tuesday this week. They said her platelets were low so we had to go to the hospital on Wednesday for a platelet transfusion. This took several hours to complete so we went prepared with things to occupy the time.
On Tuesday and Thursday afternoon, Leila had her tutor time with Mr. Gardner. She does very well with him and he is impressed with her progress.
This week we are starting to see an increase in Leila's appetite. The steroid called Dexamethasone causes overeating, weight gain, a round puffy face, bloated stomach with pain and mood/behavior changes. All of these side effects are "great" for mom and dad to deal with, especially the mood swings. One minute she is screaming and the next she is crying. We deal with it hour by hour! We do our best to be as patient as possible and let her eat everything in the house!
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